More MCS Sites. Health and Medicine Website Directory. www.internet-health-directory.com/Conditions_and_Diseases_Immune_Disorders_Multiple_Chemical_Sensitivity.html
Chemical Injury Support Registry was established for the main purpose of bringing together those who wish to be active in various write-in campaigns supporting issues regarding chemical injury. This list is also for those who would like to produce change in the manufacturing of chemically based products to those that are non-toxic and chemical-free. Posts for this group should be limited to the following: 1). Identifying a particular chemical issue members would like to start a write-in campaign for. 2). Posts should include background information regarding the issue, such as a newspaper article link, etc. Also any contact information for individuals the group should send email to. Thank you for being an active member of the chemical injury community. Your support is appreciated. health.groups.yahoo.com/group/chemicalinjurysupportregistry
Discussion Board. MCSurvivors. You may still get a notice asking you to pay, but you DO NOT have to pay to use the MCSurvivors discussion board. www.communityzero.com/go.jsp?user_name=Cowgirl7&strAlias=mcsurvivors or www.communityzero.com/mcsurvivors
Message Board. Environmental Health Center (EHC). Dallas, TX. Clinic for MCS/EI. Phone: 214-368-4132. www.ehcd.com
MCS Discussion Group. Yahoo Groups - People afflicted with Chemical Sensitivity, Chronic Carbon Monoxide Poisoning &/or Disorders of Porphyrin Metabolism can talk about their illness, inquire with others on avoidence, methods of cleaning & products one can use for necessary hygiene. groups.yahoo.com/group/MultipleChemicalSensitivity
Multiple Chemical Sensitivity/Chemical Injury Message Board. This is an on-line health discussion forum called news24seven.tv:HEALTHTALK. This is a discussion forum on topics of your choice. You may also choose to read the latest health news headlines, towards the bottom of this page. Click on the link for multiple chemical sensitivity/chemical injury Diana Buckland 7/11/03. The contents frame shows the titles of all articles posted to the discussion. You may also, post a new article (starting a new thread) or search the articles. www.investigatemagazine.com/disc2gentalk_frm.htm
Chemical Injury Information Network (CIIN) hosts an MCS Conference October 3 -5, 2003, Hilton Garden Inn, Fairfax, VA. Contact CIIN forregistration and details. Phone: 406-547-2455. E-mail: chemicalinjury@ciin.org or www.ciin.org
Yearly Symposium: "Man and His Environment in Health and Disease." Dr. William J. Rea, Director of the Environmental Health Center-Dallas, Texas, and the American Environmental Health Foundation. Attended by physicians and researchers from other countries. Phone: 214-368-4132. www.ehcd.com
6 Electro Magnetic Field Control (EMF)
Emergency Preparedness Initiative – Guide on the Special Needs of People with Disabilities for Emergency Managers, Planners & Responders. The National Organization of Disabilities. An excellent guide. www.nod.org/pdffiles/epi2002.pdf
8 Housing
Chemical Injury/Poisoning Flash code. Medical diagnostic code for chemical injury posted for physicians. See Injury and Poisoning 66.17.18.109/flashcode/home.jsp
Chemical Injury Support Registry was established for the main purpose of bringing together those who wish to be active in various write-in campaigns supporting issues regarding chemical injury. This list is also for those who would like to produce change in the manufacturing of chemically based products to those that are non-toxic and chemical-free. Posts for this group should be limited to the following: 1). Identifying a particular chemical issue members would like to start a write-in campaign for. 2). Posts should include background information regarding the issue, such as a newspaper article link, etc. Also any contact information for individuals the group should send email to. Thank you for being an active member of the chemical injury community. Your support is appreciated. health.groups.yahoo.com/group/chemicalinjurysupportregistry
Coalition Against Toxins. www.coalitionagainsttoxins.com
"Goldenfire." MCS/EI story, message board and links. goldenfiresmcs.vr9.com
Immune Web. Immune is for people (and their significant others, family, friends, and medical care workers) with various immune-system related ailments such as: chronic fatigue syndrome, candida, lupus, fibromyalgia, Epstein-Barr, multiple allergies, environmental illness, chemical sensitivity, etc., and the symptoms that result from any of the above, including learning disabilities, migraines, asthma, hypoglycemia, etc. www.immuneweb.org/
MCS/EI Survivors. www.mcsurvivors.com
MCS for Beginners. www.geocities.com/HotSprings/Spa/4415/index.html
MCS: Health and Environment. Supporting the Chemically Sensitive. "What is MCS? " Subscribe to the Canary News. Free introductory copy. www.mcshealthenviron.org
MCS Homepage. View the MCS Awareness Proclamation in Florida, for 2003, signed by Governor Jeb Bush, and the MCS Awareness Week Proclamation in Broward county, signed by the Mayor of Broward County, 2003. Every year since 2000, Christiane Tourtet writes to Governor Bush, and to the Mayor of Broward County and they have signed each MCS Proclamation. Links to diagnostic Spect scan image for MCS, Gulf War Syndrome and MCS story. www.nettally.com/prusty/mcs.htm (Editor's note: Concerning MCS as "permanent damage to certain brain cells," with the help of proper MCS medical specialists, and avoidnace of chemicals, MCS persons can have hope to recover and lead involved and functional lives. Concerning medical treatments, please consult and seek treatment with properly trained MCS specailists. Medical)
MCS NYC: living with Multiple Chemical Sensitivity in New York City. "We are disabled, cannot work, and are primarily homebound. We are unable to do many basic things for ourselves. We live in New York City. This is a collection of resources that has helped us. It has been discovered and gathered the hard way, after many crises and setbacks, through periods of severely crippling illness, over many years of struggle." This website was compiled to assist New Yorkers who have suffered chemical injury. It is hoped that it will also be valuable to anyone trying to understand, cope with, and assist someone with Multiple Chemical Sensitivity (MCS), or Environmental Injury (EI). www.mcsnyc.com
MCS Referral & Resources. Peer-reviewed scientific papers, official reports, books and book chapters on MCS. The peer-reviewed medical literature on MCS dates from 1952 but more than half the 400+ references identified by MCS R&R were published since 1992. www.mcsrr.org/resources/bibliography
MCS Resources for Multiple Chemical Sensitivity. MCS groups by geographic area, MCS lodging questionnaire, links for MCS resources, entire text of "What Would Terry Do?" humorous book about MCS for your reading pleasure. www.princesstigerlily.com/mcs/index.html
Mega Search Engine. Over 300 sites relating to MCS/EI. www.metagopher.com
Multiple Chemical Sensitivity (Environmental Illness) by Jacki Barineau. www.ourlittleplace.com/mcs.html
Red Flags Weekly. Raising Issues, Facing Controversies, Exploring Ideas in Health, Medical Science And Personal Growth. Nicolas Regush A former science/medical writer for ABC News is highly distressed at the poor quality of information available today on medicine, the politics of medicine, science, politics of science, drugs, disease processes, etc. He features articles on chemical injury related issues. www.redflagsweekly.com
The Environmental Connection. There is a compelling link between human illness and environment. Learn all you can about these issues and the steps you can take to lead a healthier life. You'll find information and resources about ecological and environmental health issues other news sources either don't have or won't dare tell you. Link to environmental e-cards. Subscribe to the newsletter. www.theenvironmentalconnection.com
The Medical Denial of Environmental Illnesses. Harold E Buttram, MD. Article on website. Also article on Childhood Autism, Predominantly an Environmental Illness. www.mercola.com/2001/dec/1/immunizations2.htm
Treatment for MCS. Perceived Treatment Efficacy for Conventional and Alternative Therapies Reported by Persons with Multiple Chemical Sensitivity. Fragranced Products Information Network. www.fpinva.org/EHP/5936/5936.html
Collaborative on Health and the Environment. (CHE) Database summarizes many links between chemical contaminants and about 200 human diseases, disorders, or conditions. See Core Themes, "Does the dose make the poison?" for information on high exposure to poisons and chronic low level exposures. www.protectingourhealth.org
MCS Referral & Resources. Peer-reviewed scientific papers, official reports, books and book chapters on MCS. The peer-reviewed medical literature on MCS dates from 1952 but more than half the 400+ references identified by MCS R&R were published since 1992. www.mcsrr.org/resources/bibliography
Study of Sheep Dippers and Paroxynase. Letter sent to California Pesticide Regulatory Agency. Barbara Rubin. www.enviromental-toxins.org.uk/casefiles/rubinorganicphosphateletter.doc E-mail: Raisyl@webtv.net Environmental Toxins Foundation, March 8th 2002.
Our Toxic Times. Newsletter for the chemically injured. Literary and art contest issue, and housing ads. Chemical Injury Information Network. Phone: 406-547-2255. www.ciin.org
PdS Disability Facts and Social Security Trends, Doug Smith. A quarterly newsletter designed to keep you abreast of changes in the laws, regulations, and policies related to Social Security Disability. Published in newsletter format, it offers insights on proving disability, exploring income-increasing opportunities without losing your benefits, and much more. $19.95/year. Send check/money order to: Physicians' Disability Services, Inc., P.O. Box 827, Arnold, MD 21012. Phone: 410/431-5279.
16 Chemical Injury in the Workplace
Worker's Compensation Pitfalls. Barbara Rubin. Helpful information about the difficulties to secure medical help for disability acquired at work. Letter for your congressperson.
See Dental Toxins and Nightmare on Dental Biocompatible Street under Gathering Stories for more on safer materials and dental experiences.
18 Safer Environment Speaker, Consultants and Counseling
See Environmental Speaker, Consultants, and Psychological Counseling
19 Support for MCS/EI
Share, Care, and Prayer. Personal support newsletter for MCS/EI, member directory, and information. P.O. Box 2080, Frazier Park, CA 93225 www.sharecareprayer.org
Hands of Hope Ministry. Chaplain Jim Forbes and Jan Forbes, RN. Rural Route 1 Box 135 B, Hot Springs, SD 57747 Phone: 605-673-5565. Due to health considerations, please, no cell, cordless, or speaker phones. Office hours 11AM- 5PM Mountain time.
20 Test Kits and Toxicology
Toxicology Lab. ETI Environmental Lab, 4730 Mountain Road, Suite 21, Pasadena, MD 21122 (410) 437-4100 Fax:(410) 437-5400 Robert Simon, Ph.D. ETIRKS@aol.com USPS Mailing address: ETI Environmental Lab, P. O. Box 2410 Pasadena, MD 21123
21 Travel for MCS and Access
MCS Travel Resources. The Safer Travel Directory. An exhaustive listing of vacation destinations for the person with Environmental Illness or Multiple Chemical Sensitivities. RV Tips for the Chemically Sensitive, Pen-Pal Section, also notices of events taking place. Bed & Breakfasts, motels, and MCS support groups. mcstravel.resourcez.com
MCS Access Information and News. For hospitals, workplaces, places of worship, dances, hospitals/healthcare facilities, etc. The Environmental Health Network (EHN): users.lmi.net/wilworks Click on "Access" which is also known as "Take Heart!"
CyberCIL of Arizona. The mission of CyberCil of Arizona is to provide innovative, meaningful assistance in accordance with the principles and philosophy of independent living to, and on behalf of, Arizonans with disabilities so that they may attain or continue an independent lifestyle. cybercil.com
Air travelers with disabilities, Department of Transportation Hotline: 1-800-778-4838 The U.S. Department of Transportation is calling on all disability organizations to promote public education about its Toll Free Hotline for air travelers with disabilities through their organization newsletters, list-serves and sponsored events.
The Toll Free Hotline for disabled air travelers has been in operation since August 2002 and is available for callers from 7 a.m. to 11 p.m. Eastern Time, seven days a week. The Hotline serves two main purposes: (1) education and (2) assistance in resolving disability-related air travel problems. * Many disabled air travelers are not aware of their rights and the Hotline, in part, exists as an educational service to inform air travelers with disabilities about their rights under the Air Carrier Access Act and the Department's implementing regulations 14 CFR Part 382 (Part 382). Hotline operators are well versed in the ACAA and Part 382 and can provide callers with on the spot general information about the rights of air travelers with disabilities. The Hotline operators also respond to requests for printed consumer information about air travel rights of the disabled.
* The Hotline can also assist air travelers with disabilities in resolving real time or upcoming issues with air carriers. The purpose of "real-time" assistance is to facilitate airline compliance with DOT's rules by suggesting to the passenger and the airline involved alternative customer-service solutions to the problem. The airline remains responsible for deciding what action will be taken to resolve the issue in accordance with the ACAA and Part 382. Generally, if a caller has a real time problem or an upcoming issue with an air carrier, a Hotline Duty Officer will contact that air carrier and attempt to resolve the issue. For example, there have been a number of incidents in which Hotline Duty Officers have contacted air carriers and convinced them to accept service animals and electric wheelchairs on board flights, to stow folding wheelchairs in the cabin, and to provide requested wheelchair assistance. Air travelers who want information about the rights of persons with disabilities in air travel or who experience disability-related air travel service problems may call the Hotline to obtain assistance
22 Trying to Explain MCS/EI?. . . to myself, family and friends
Cynthia Wilson, of Chemical Injury Information Network, proposes the best way to explain Multiple Chemical Sensitivity is to state that you have it as the result of a chemical injury. It helps to add that you have reactions to small amounts of chemicals along with other health problems.
This presents a more accurate picture of what is responsible for our illness - the chemical injury. If we use the term sensitivity or allergy, it can be misleading. It might suggest that the symptoms are relatively minor and easily treatable. I believe that "sensitivity" may connote that we are frail persons or that the "sensitivities" may have a psychosomatic origin.
MCS Referral & Resources. Peer-reviewed scientific papers, official reports, books and book chapters on MCS. The peer-reviewed medical literature on MCS dates from 1952 but more than half the 400+ references identified by MCS R&R were published since 1992. www.mcsrr.org/resources/bibliography